Jordan Butler presented a poster on behalf of the Network at the 19th International WMS Congress, 7-11 October 2014, Berlin, Germany
Project Management Teleconference 16th September 2014
Leicester started entering data into the database September 2014
Caldicott Guardian approval given for Oxford. Oxford joined the database July 2014
A poster entitled: The NorthStar Ambulatory Assessment in Duchenne muscular dystrophy: considerations for the design of clinical trials was presented by Dr. Valeria Ricotti at the 13th International congress on Neuromuscular Diseases in Nice, France July 5-10th 2014
The NorthStar National Neuromuscular Database Clinical Network Meeting was held Friday 4th April 2014, UCL, London This meeting, chaired by Kate Bushby, was attended by professionals from the Clinical Network and patient care organisation colleagues. The support of MDC and Genzyme was gratefully acknowledged.
NorthStar Clinicians Meeting BPNA, Winchester, 31st January 2014
Project Management Teleconference 22nd January 2014