Within the North Star network, there are several groups who are responsible for the management and supervision of the network. Each group has specific roles and the decisions made at group meetings aim to support the smooth running of the network.  
​External Steering Committee
Responsible for the oversight of network conduct and deliverables. ​
Members
Centre
​All lead Neurologists and lead Physiotherapists from the network centres
All network centres
Northstar Patient and Parent representatives
External members
​Project Management Group
Take the lead role in reviewing and approving network data and audit requests.
​Professor Francesco Muntoni, Paediatric Neurologist at Great Ormond Street Hospital. 
​Director of the Dubowitz Neuromuscular Centre, UCL Institute of Child Health and Great Ormond Street Hospital for Children, London, UK.
​Dr Adnan Manzur, Consultant Paediatric Neurologist, Dubowitz Neuromuscular Centre, Great Ormond Street Hospital for Children, London, UK.
Dr Sam Amin, Consultant Paediatric Neurologist, Bristol Royal Hospital for Children, Bristol, UK.
Dr Anna Mayhew, Consultant Research Physiotherapist, Centre for Life, Institute of Genetic Medicine, Newcastle, UK.
Jennie Sheehan, Clinical Specialist Paediatric Physiotherapist, Evelina London Children's Hospital, London, UK.
Deepak Parasuraman, Consultant Paediatrician - Neuromuscular Service, Birmingham Heartlands Hospital, Birmingham, UK. 
Data Monitoring Group 
​To oversee data quality and management of the North Star database.
  • ​Dr Adnan Manzur, Consultant Paediatric Neurologist, Dubowitz Neuromuscular Centre, Great Ormond Street Hospital for Children, London, UK.
  • Vandana Ayyar-Gupta, ​Senior Clinical Academic Coordinator, North Star Network, Dubowitz Neuromuscular Centre, UCL Great Ormond Street Institute of Child Health, London, UK. 
  • Horeja Njai, North Star Study Coordinator, Dubowitz Neuromuscular Centre, UCL Great Ormond Street Institute of Child Health, London, UK. 
  • Deborah Ridout, ​UCL Statistician, UCL Great Ormond Street Institute of Child Health, London, UK. 
  • Brian Lings, Certus, Exeter, UK.
  • Jassi Sodhi, Research Physiotherapist, Centre for Life, Institute of Genetic Medicine, Newcastle, UK.
  • Vasantha Gowda, Consultant Paediatric Neurologist, Evelina London Children’s Hospital, London, UK.
Central North Star Team based at University College London,  Institute of Child Health, Great Ormond Street Hospital for Children, London, UK
  • Professor Francesco Muntoni, Paediatric Neurologist, Director of the Dubowitz Neuromuscular Centre.
  • ​Dr Adnan Manzur, Consultant Paediatric Neurologist.
  • Vandana Ayyar-Gupta, ​Senior Clinical Academic Coordinator, North Star Network.
  • Horeja Njai, North Star Study Coordinator.
  • Victoria Selby, Research Physiotherapist.